Poem – Happy death day!

I look forward
to the time
when we see death
as graduation
and not failure.

I look forward
to the time
where we
celebrate
death

not in a dark way
but as a release
into the light,
The all
The ever.

Death should be anticipated,
prepared for
and expected
like births are
with planning
and parties
and maybe even presents.

Not like you need much
where you are going.
You can’t take it with you
after all.

Death isn’t so scary
that way
isn’t so foreign, so frightening.

Perhaps
Hallmark will come out with cards.
Hurray! You are mortal!
Happy death day!
Or
Congratulations! Your Mom died!
You must be so proud of her!

Death is a stepping from one country
to another
no passport required
no overnight bags needed.
Death isn’t something
to be afraid of.
Fear of it is.

Give me away

When I die if you need to weep
Cry for your brother or sister
Walking the street beside you
And when you need me put your arms around anyone
And give them what you need to give me.

I want to leave you something
Something better than words or sounds.

Look for me in the people I’ve known or loved
And if you cannot give me away
At least let me live in your eyes and not on your mind.

You can love me most by letting hands touch hands
By letting bodies touch bodies
And by letting go of children that need to be free.

Love doesn’t die, people do
So when all that’s left of me is love
Give me away.

-Anonymous, copied from Page 346 of the book “Life Prayers”
I read this at a coworker’s memorial service.

The soul and the body – the rider and the horse.

The soul is the rider. The body is the horse.

A horse has a mind of its own, and will want to wander. It wants to veer towards the fun things, the pretty things. It gets distracted. It gets bogged down, lost. If left on its own, it will lead you astray.

The rider’s job is to learn how to get the horse to go where is best. The rider’s job is to make sure the horse has good food, enough exercise, and proper shelter.

If the rider takes good care of the horse and controls where it goes, the horse and the rider will both benefit.

If the rider lets the horse have control, lets the horse eat whatever it wants, and only takes the horse out when he wants to go somewhere, they will both suffer.

If the soul does not take care of the body, the body will be in charge. The soul will feel trapped. The soul will not be able to do what it needs to do. It will not be able to complete its mission.

Sometimes the horse is difficult. Sometimes it is headstrong and willful. Sometimes it has a genetic weakness. Sometimes it has a bad leg.

Sometimes the rider is inept. Sometimes the rider lets the horse take over, so they end up where the horse wants to go, but not where the rider wants to go. Sometimes the rider neglects to feed the horse healthy food and the horse isn’t able to go anywhere at all.

Blinders help. Training helps. Discipline helps. This requires constant, focused work. It is OK to ask for help – you don’t have to do it all on your own.

If you can’t control your cravings, then seek help in a therapist, minister, books, or friends. Find someone or something that helps you get back on track. Make sure you aren’t exchanging one crutch for another. Learn why you keep letting your body lead you astray, or what are you doing that isn’t nurturing it.

Where is your weakness? Dig down to the root. Where did you learn that flawed coping mechanism? Unlearn, to relearn. It is never too late to start over.

Asking for help is a sign of strength. It means that you want to get stronger. It is the only way out of that hole. You’ve tried to do it yourself and failed. This is part of the test. Pride will kill you.

Every lesson is repeated until learned. You will stay in this body until you can’t learn any more from it. Then you will leave it. You may come back to try again, or go further.

Death is realizing that this body can’t get you where you need to go. Sometimes you don’t have the tools. Sometimes the body isn’t strong enough, and you don’t know how to get it that way.

Baby in reverse.

Taking care of a dying person is like taking care of a baby, but in reverse. They become less and less able to take care of themselves. They spend more and more time asleep. They start to make less sense.

It is important not to be afraid by these differences. This formerly active and vibrant person that you knew is changing right before your eyes. She will show less signs of being interested in anything other than what is happening right in front of her.

It isn’t anything personal. It is simply a normal part of the dying process. Consider that it is like hypothermia. When the body gets very cold it will conserve all of its energy. The body will automatically start taking energy and heat away from the extremities. Death is like that, but it is social and spiritual.

It is a time where they withdraw from their external activities and all of their attention and energy is refocused and re-centered. They will begin to show less and less interest in their friends and in their family. They may have unfinished business they feel that they need to do. And they may start trying to control things more. This is a normal behavior for people who have felt very nervous throughout their lives. People tend to die the way they live.

You may see a dying person “working”. They are working in any way they can. They may pick it their bedclothes. They may move things around. As long as they are not doing anything dangerous let them continue to do it.

Dying people may see people from the other side. I do not believe that these are hallucinations. I believe that they have one foot in this world and one foot in the other. Again, as long as they are not causing any harm to themselves let them continue. If it is not making them anxious, there isn’t a problem. Do not argue with them. You do not want to agitate them. You want them to have as easy a transition as possible.

When my mom was dying I saw my helping her during this time as my gift to her. She took care of me when I was a baby and when I was sick. I figured that it was my duty to take care of her when she was dying. Fortunately we had a good relationship, so that made it easier.

The connection between death and depression.

I was just thinking recently about how the signs of death and the symptoms of depression are very similar. I think that they are related. Perhaps depression is a sign of the soul leaving the body. Perhaps the cure for depression is to find ways to get the soul to stay in the body – for the soul to find delight by being corporal.

I’ve heard that our souls choose to be here – that we want to be in a body. Souls are able to see and hear, but they cannot smell, taste, or touch. They cannot enjoy anything that comes with being in a body. They can’t enjoy the feeling from working in the garden or winning a race. They cannot enjoy the taste of home-made zucchini bread. They cannot make someone smile by bringing them a present “just because”.

Let us look at the signs of death that are also some of the symptoms of depression.

— Loss of appetite

— Excessive fatigue and sleep, and increased weakness.

— Mental confusion or disorientation

— Social withdrawal

Here is what you do with a dying person – perhaps it could also be connected to a depressed person…
– -Talk with the person gently and calmly. Assure her that she is loved, and that you will remember her. Let her know that her life mattered. She needs to know that you will be able to go on without her.

We all need to feel connected and that we matter. We need to feel like what we do has meaning. When someone is depressed, they feel alone. They feel like they are not part of the community. Even if they are in a group of people they feel separate.

Turning this around can be as simple as getting the person to get involved. Make an investment of time to call the person, take them out, help them to be part of the community. Volunteering helps. Doing art helps. Joining a club helps. People have to feel like they matter.

When you are depressed, everything seems grey. Food doesn’t taste good. Music sounds flat. Nothing goes in like it should. It is like being in a huge hole, and you don’t even have the energy to get out.

I’ve learned that when I feel depression creeping up, I realize that I’ve not been doing what I know feeds my soul. I think of the soul as being a flame, and it is important to keep it burning bright.

Getting regular exercise and eating healthy foods helps. Making time to be with friends helps. Making art helps.

Notice how these things are the opposite of the dying process.

Work on being more active – physically and socially. Work on the appetite. Eat healthy, tasty food. Be mindful of how much sleep you get. Create a schedule and stick to it. Keep your mind active – take up a hobby. Learn something new. You can combine some of these by teaching someone a skill you have.

Maybe I’ve got the cause and the effect backwards. Maybe the soul is trying to leave the body because it isn’t getting the nourishment it needs from that body. “Nourishment” means more than just vitamins and minerals. When we sit around all day and when we eat bad food, we are damaging our bodies and then by extension – our souls. When we keep to ourselves and don’t make time to connect with the community by having friends or feeling like we belong or matter, we don’t need to be in a body.

Perhaps the soul is trying to leave the body because it feels like this body isn’t serving it.

Poem – middle

I hate the middle bits
the in-between
the waiting.

I like starting school
and graduation
but not all the days
of work
in between.

I like getting a tattoo
and having one
but not the middle bit,
the healing time.

I hate this waiting
for her to die
from her cancer.
Each phone call, each text
could be the one
to say
she’s passed.

Life on pause,
in the middle,
isn’t a life
at all.

But it is the middle that
gets to the end.

It is the middle that is
the reason
for the beginning.

It is the waiting that
seasons the sauce.

Babies take
nine months,
not just for them
but also for us
to get ready
in body, mind, and soul.
If nothing else to make a room
ready.

We need these transitions,
these spaces between,
these middle bits.

They aren’t in the way.

They are the way.

Advice to caregivers

Your life is not your own when someone that you love is sick. When you are the caregiver you have to change everything you do. It is kind of like living under siege.

You have to make sure that your car never goes below at least a quarter tank of gas. In fact having half a gas or more at all times is really useful. You have to make sure that you have an overnight bag packed in your car or at least in your house at all times. You’ll need a two or three day supply of clothes. Actually, having it packed in your car is better because you might get the call from a nurse while you were at work, and you don’t have time to go home and get your supplies. You have to make sure that you have a three day supply of medicine with you at all times too.

You can’t leave any of this to chance or to the last minute. Taking care of someone who is terminally ill is a lot like living in a war zone. You have to do what you can when you can. There is no guarantee of any other chance to relax a refresh yourself. You have to take care of yourself so you can take care of them.

You can’t do without food. Eating snacks and drinking sodas doesn’t count. Nothing from a vending machine is food. You have to make a point of eating real food, even if you don’t feel like eating. In fact, you won’t feel like it, but that doesn’t mean you can do without it. Cars have to have gasoline in them to go. Bodies need food. Skip all sugars and caffeine – they will make you crash.

You’ll need to make a point of getting as much sleep as possible. This doesn’t mean oversleeping. But take the time to sleep when you can. Sleep is restorative.

Get exercise – go walk up and down the halls. Stretch.

Take a notebook and write. Writing helps process feelings and gets them out. Writing can help you understand what you are thinking.

All of your own personal chores have to be dealt with immediately. Don’t leave the mowing for another day. Don’t leave doing laundry for another day. You don’t have another day. That day is when you get called to go have to take care of somebody else’s problem.

You have to keep your own head above water before you can rescue someone else. If you’re not very good at swimming and you try and rescue someone else you will both drown.

You have to be able to shift gears. Sometimes the problem is shifting out of this emergency mode once you return to normal. Nothing is ever the same after you’ve taken care of someone who is dying. It’s like you had to grow an extra arm. So you don’t really know what to do with it once everything is back to normal. And of course it never is normal once they die. You are without someone you cared for.

Being a caregiver to a parent when the relationship was bad is extra hard. They have not taught you how to take control. They have not taught you how to be an adult. They have taught you your whole life that your opinion doesn’t matter. They have taught you your whole life that whatever you think is not okay. So now you don’t have the legs to stand on to take care of them. You can’t ask them what to do because they have reverted into being like a child. Now you have to be the adult, and you’ve not had any practice at it.

Death is the other side of birth

Our culture is so squeamish about death. Death is just the other side of birth. But we hide that too. We do both with strangers, in hospitals. We used to do them in our homes, with our friends and family. Both used to be a normal part of life. Now they both have been taken away from us. Or rather, we’ve given them away.

Just like people are starting to get the idea that a home birth can be a safe and fulfilling experience, so too can death. These aren’t medical procedures. There isn’t anything wrong. They don’t need doctors or nurses. They need trained helpers, midwives.

Fear comes from ignorance. Learn everything you can and it won’t be scary. Don’t know how to find the information you need? Go to the library. That is what the librarians are for. Google “Signs of death” and you’ll find helpful stuff too.

There are signs of approaching death, just like with an approaching birth. They are only scary if you don’t know them.

Fear of death just makes it worse. It isn’t a failure. It is natural, and it happens to everybody and everything. It is a transition.

It is leaving this body. The body is just a vehicle for the soul.

Nurses don’t get this. Doctor’s don’t get this. They are worried about giving an overdose of pain medicine to a terminally ill patient.

Why do we show more mercy to a dog than a person? Why does the person have to suffer to the bitter end?

Broken heart

When patrons hear that Jeff died of a heart attack just 7 weeks after his wife died, they often comment that “He died of a broken heart.”

No, he died because he didn’t take care of himself. He died because he spent his time taking care of everybody else and not himself.

He ate meat-laden breakfast sandwiches every morning. He got fast food for lunch. Sometimes he didn’t eat supper at all. He ate cookies and drank tea all day long. Everything had sugar or caffeine or both, and lots of it.

He knew his blood pressure was high, but he didn’t do anything about it. He had unusual pains and didn’t feel well, but didn’t go to the doctor.

I suspect he thought that if he took time off to go to the doctor, then he would be taking time away from us, his coworkers. He didn’t want to inconvenience us and make us even more short-handed.

You can’t make us more short-handed than being dead.

He had OCD. Constantly trying to fix things, to control things. The one thing he could control, his health, he didn’t.

Maybe if he had taken the time to take care of what he could take care of, he’d still be here.

He had a lot of stress, what with having two kids to deal with – children that weren’t even his legally. His wife had two children from a previous marriage, and they’d never gotten around to having him adopt them. They were worried about dealing with the kids’ deadbeat dad.

He drove an hour one way every day to go to work. His wife liked where they lived, but he couldn’t find work there. He put his needs aside. That was a long drive, and a lot of stress.

It was always about other people. He just liked to make people happy, he said. His dad was the same way, and he died young too.

What would make us happy would be for him to still be here, and well, and balanced, and happy.

Lost. Talking with ghosts in the kitchen.

I talk with dead people while I make bread. It started with my Mom, and then expanded out to all my relatives. Yesterday it included my recently deceased coworker.

I wasn’t planning on talking with him. I thought that making bread was my time to spend with my female ancestors, all the ones I met and all the ones I didn’t. Making bread and cooking in general is something that women do. The kitchen is the place where you cook. Thus, to talk to them, I go where they were.

Now, they never spent time in my kitchen, but that doesn’t matter. It is the heart of the place, the rituals and the motions, that matter. This is why you can find God in any sacred place. It isn’t the building that matters – it is what goes on inside the building.

Making bread has become my special time to talk with my relatives, but I’d been thinking a lot about Jeff. He died suddenly and unexpectedly, and that is the problem. He had sort of quit living. For over a month he pined for his wife who had died. He kept talking about how it wasn’t fair that they had just found each other and now they were separated. He wanted to be with her again.

Death isn’t preferable to life. In death, you can’t experience the world like you can with a body. In death, you are free of the limitations of the body. You no longer experience the pains that the body has, or the cravings. But you also can’t experience the good things either.

I was talking to him while I was mixing the ingredients for the bread, while I was thinking about how we need rituals and practices to “shape” our feelings. We need order so we know how to feel. We need a graduation ceremony to let us know that we are no longer in high school. We need a funeral ceremony to know that our friend or relative is no longer with us. We use ceremony and ritual to mark our days and our lives. They are like gateways, or doors. They mark a change from “here” and “there”.

I was talking with him, telling him how much he is going to miss since he has died. He can’t eat the bread that I make anymore. He can’t drink a Yoo-Hoo (it is a whey-based chocolate drink, and very tasty). He can’t touch, smell, or taste. Spirits can see, but they can’t interact with the world. He chose to withdraw from the world. By yearning for his wife who had passed over to the other side, he left this side.

Sort of.

Because he died peacefully in his sleep, because he died young, he doesn’t know he has died. He thinks he is still stuck in his dreams and is having a hard time waking up.

I told him to seek Amy, (his wife) to go to her. She is what he wants. But she can’t be with him if his spirit is still mostly here. He has no body for his spirit to reside in, so he’s stuck.

I had a dream with him in it last night. He was joking with another coworker like they always do. I was sitting at my desk and the coworker was at his. Jeff was sitting right next to him, huddled up close. I couldn’t see either of them at first because the computer monitor was in the way. Then I heard Jeff joking like always after lunch. I scooted my chair over and saw him.

I said “You’re alive?!” and he smiled sheepishly. “Why would you do this to me?” Why would they make me think he had died? He had no answer. I reached for his hand, to hold it, to prove to me that he was real. I held his hand across the desk for a while and we talked. Then he said it was a patient of his who had died, that there was a misunderstanding. It wasn’t him.

I said he doesn’t have patients. He isn’t a doctor. Then he looked confused, and the dream ended.