So many people are embarrassed to admit that being a caregiver is not part of who they are. That makes the whole experience that much harder. They labor along under the expectations of society, meanwhile taking care of someone who is very ill.
Women are expected to selflessly drop everything to take care of a sick relative, regardless of ability, interest, or skill. Simply being female doesn’t mean that you are also a cook, a nurse, a counselor. These are skills that must be learned. You don’t suddenly know how to care for someone who is terminally ill. Nor do you suddenly have the desire to, just because it is expected of you.
What about your income in the meantime? You don’t still get to take in a paycheck when you quit your job to care for a relative. There is the Family Leave Act – but that only ensures that your job can’t fire you for going on leave. They have to give you a job back. It may not be the job that you had, however. It also does not mean that you will get paid in the meantime. It is leave without pay.
The caregiver’s closeness to their relative is irrelevant. The mother is abusive? Father raped her? Brother stole, lied to her? Mother and father in law are dismissive and treat her like she is stupid? Doesn’t matter – your duty is to tend them, because you are a woman.
This is unreasonable.
There is a reason that my “Death Guilt” post always gets a lot of hits. People don’t talk about this stuff. We should.
When a man is well enough to go home from the hospital but not well enough to take care of himself, he’s sent home if he has a wife there. When the same thing happens with a woman, she’s sent to a nursing home to recuperate. It is assumed that the wife will know how – and be able to (mentally and emotionally) take care of him. It is assumed that a man will not. This is insulting to both sexes.
I’ve heard from people who work in nursing homes that they judge a family that doesn’t visit. They think they are selfish. They don’t know the history of the relationship. They have no way of knowing how abusive (mentally, emotionally, physically, psychologically) the person was to their family members. The effects of this abuse remain even when (if) the abuse stops. They may never go away.
Sometimes the abuse stops because the person is no longer able to be abusive – not because they don’t want to. It is far harder to hit someone when you have Parkinson’s disease. It is far harder to insult your children when you have dementia and can’t even remember that they ARE your children.
Being a caregiver should be a gift, not a demand. It should be because you want to, not because it is expected.
Just because your parents gave you life does not mean that you have to take them into your home and care for them when they get old. They chose to have you. You did not choose to have them. This is an unequal relationship.
When you marry, you marry that person – not their family. You make a legal statement that you will stay with them regardless of their health. You do not make the same promises to their parents. There is nothing about the marriage vows that obligates you to sacrifice yourself to take care of them. This is an unspoken assumption that is damaging and must be called out.
betsybeadhead 